Haben is featured in Levi’s Beauty of Becoming campaign

I, Haben, a Black woman with long black hair, am sitting on a stool in front of a brown background and green leaves with pink floral arrangements. I’m wearing a denim jacket over a black top and white patterned skirt

I was born Deafblind, but I wasn’t born an advocate. Resisting ableism, racism and other forms of oppression is exhausting, ongoing work. We all face the choice to accept oppression or advocate for justice. Video created and directed by Oge Egbuonu. Music by Phantogram. Portrait photography by Shaniqwa Jarvis. Campaign by Levi’s. #LevisBecoming Video description … Read more

Disability & Innovation: The Universal Benefits of Accessible Design by Haben Girma @ Apple’s WWDC 2016

Disability & Innovation: The Universal Benefits of Accessible Design, by Haben Girma @ WWDC 2016

Transcript

[ Music ]

Felice: Ladies and gentlemen, please join me in welcoming on stage, Haben Girma.

[ Applause ]

Haben: Good afternoon. Thank you for the introduction, Felice.

My name is Haben Girma. I work as an accessibility and inclusion advocate, teaching organizations
and individuals to design with accessibility in mind.

I’m Deafblind. Deafblindness encompasses a wide spectrum of vision and hearing loss. I have a little bit of hearing, and a little bit of vision. I see maybe about 1% of what the average sighted person sees. By identifying as Deafblind, I’m telling the world that I’m part of a community where knowledge gained through touch is equal in value to knowledge gained through sight, sound, or other means. Our world is incredibly diverse, and when we design apps, that celebrate that diversity, and recognize that diversity, we all benefit. So I identify as Deafblind to tell the world to design non-visual access, and non-auditory access to help maximize communication. This is tricky for some people.

One of my best friends, when she first met me, wasn’t sure how to say hi. She was sitting next to me in one of our classes at law school. She waved hi, but I couldn’t see it. She voiced, “Hi,” but I couldn’t hear it. It was our first day of international law class, and she wasn’t thinking about international law. She was thinking about how to get my attention. After a while, during the class, she came up with a plan. She did the most logical thing for a student. She went onto Facebook and sent me a message saying, “Hi, Haben, I’m sitting right next to you.”

Technology has facilitated access to communication for a lot of people. And when apps are designed with accessibility in mind — iMessages, Mail, other communication tools — people with disabilities like myself can use them and are able to connect and share information with people.

I saw that Facebook message my friend sent later, and I reached out to her and we were able to communicate. I explained the various communication methods I use.

Technology facilitates connections when both parties are willing and interested in practicing inclusion. I want to share a photo that highlights some of the communication methods I use. In this photo I’m standing at a table, and I’m reading from a digital Braille display. Digital Braille, comes through a device with mechanical pins that pop up to form Braille letters. I read these letters by feeling the dots. Braille is a tool, not a language. I primarily use English Braille. I can read Spanish Braille, and I’ve seen Braille in many different languages. I was once on a ferry going from Italy to Greece. I remembered feeling a bit lost on the ferry because all of the signs were in Greek Braille. So Braille is a tool and the Braille display is a device that produces this information in Braille.

Also in the photo, President Obama is standing at the table and he’s typing on an Apple wireless keyboard. What’s being typed is being sent to the digital Braille display. I’m reading what’s being typed. This is a communication method that I developed.

Deaf individuals have been developing communication tools for hundreds of years. Communities around the world have developed sign languages. In the United States, the dominant sign language
is American Sign Language. Which is heavily influenced by French Sign Language.

My brother is Deafblind. When he communicates with me he uses sign language. When he’s signing I put my hand over his hand, and feel what he is signing. When he wants to listen to me, he’ll put his hand over my hand, and feel what I’m signing. Tactile sign language is another form of communication that has developed, that has been developed by the Deafblind community.

Another form is print on palm, where people write on palms. They could write in English characters, Mandarin, and other forms of characters.

Humans are incredibly creative. We design new ways for each of us to connect and engage
and share information.

Another form of communication is dance. [Video of Haben salsa dancing.] Dance is expressed in many different forms. Some Deaf individuals who are sighted will watch the other dancers and will
pick up the beats by watching the other dancers. Other individuals will watch the musicians, and pick up the beat by watching the fingers and instruments of the musicians. People are very creative and find solutions.

For me, dance is all about the connection. Salsa is like a kind of sign language. People communicate information, rhythm, beat, music, emotions, through their hands. Some of the signals
in salsa, are visual and the people I dance with will switch them around and switch those visual
signals to physical signals. Through dance we celebrate joy, connection, and community.

Communities that celebrate diversity will find ways to be inclusive. They’ll adapt strategies to make sure everyone can participate and be involved. So dance is one community in which I belong, that practices inclusion.

When I join a community the first question people usually ask me is, “How do you communicate?” The second question people usually ask me is, “Have you heard of Helen Keller?”

[Laughter]

Helen Keller was an amazing advocate. She lived from 1880 to 1968. She advocated for
women’s rights, disability rights, worker’s rights. She spent her whole life advocating, and yet many stories of Helen reduce her to one theme. She succeeded despite her disability. Disability never
holds anyone back. Disability is not something that people need to overcome. The barriers that exist
are created by society, and it’s up to every single one of us to work together to remove those barriers.

Helen was successful because she was part of communities that chose to practice inclusion. She went to Radcliffe College, and Radcliffe provided books in Braille, and made sure she had interpreters. They worked to ensure access and inclusion.

Not every community practices inclusion. Harvard wouldn’t admit Helen. Back then Harvard only admitted men. Helen’s disability didn’t hold her back. Her gender didn’t hold her back. It was the community of Harvard that chose to deny access to women.

As another example, Helen’s family would not allow her to experience marriage. Helen fell in love,
secretly got engaged, but her family prevented her from marrying the person she loved. Helen’s disability didn’t stop her from feeling love. She wrote extensively about love. But her family, her community, chose to create insurmountable barriers.

All the barriers that exist are created by society. As members of society, we play a role in removing those barriers and making sure that everyone can access information and opportunities.

We’ve come a long way since Helen’s time. More and more communities celebrate diverse families and relationships. Harvard eventually made the smart decision to open its doors to women. And now technology creates more opportunities for people to connect. I often wonder, what would Helen have accomplished, what freedom would she have enjoyed, if she had access to the world of apps
that are accessible to people with disabilities?

One of the features Apple offers for developers is called VoiceOver. VoiceOver is a screen-reader that, when an app is compatible, will produce information in speech or digital Braille for users of the app.

I’m going to share a demonstration video that shows how VoiceOver works.

[Scene, Haben sitting at a table with a Braille display and iPhone.]

Haben: A screen-reader is a program that converts graphical information to speech or digital Braille. The screenreader on the iPhone is called VoiceOver. VoiceOver also works on the Mac, iPad, and the Apple Watch. So, when I’m using my phone, I use VoiceOver. VoiceOver can speak out loud and send information to the digital Braille display.

[iPhone Screen]

VoiceOver: News. Checking for…News. National Geographic. Unread. World’s largest rodents on lam from Toronto zoo.

Haben: I’m panning right on the braille display using the advance forward buttons. If I wanted to instead use hand gestures on the iPhone, I could flick right with one finger. To open an item, I can double-tap anywhere on the screen.

VoiceOver: Text size. Caption. Title. World’s largest…Title. After escaping from the High Park Zoo in Canada, two capybaras have eluded capture for over three weeks. By Jason Bittel. Published June 9. Most people do their best to avoid rodents of unusual size, but after a pair of capybaras escaped from Toronto’s High Park zoo — Alert: Gordon. Hi! I’m at the door. Sushi. Pot of food. Fish cake with swirl design.

[Scene, Haben at the table.]

Haben: (Laughing) My friend’s at the door, so I’m just gonna let him know.

[iPhone screen.]

VoiceOver: Close Button. Reply Button.

[Scene, Haben typing on Braille display.]

[iPhone screen.]

VoiceOver: Messages notification. Hang in there! I’m almost done with this demo. Send Button.

[Scene, Haben at the table.]

Haben: VoiceOver has allowed me to access more information: news, mail, and messages, and it’s also a way for people to know when friends are at the door. Thanks for watching. Bye!

[ Applause ]

[Scene, Haben speaking on stage.]

Haben: Apple has a variety of accessibility features. VoiceOver is one which you just saw. Another one, support for Dynamic Type. When you support Dynamic Type people who are low vision and need larger font sizes can have better access to your apps. Another feature is Captioning. Support for Captioning allows individuals who are deaf or hard of hearing, to access the audio content of your videos. Support for Assistive Devices like Braille displays, switch controls… Switch controls benefit individuals with limited mobility. So these are some of the features that if you design for your apps to be accessible, will allow greater access for people with disabilities. But don’t stop there, keep innovating, keep thinking of new ways for people to
access your information.

Our goal is to have a world where all the apps in the App Store are accessible. Right now if I need an app for anything from travel to shopping, I need to spend hours looking for an accessible app. And sometimes, there isn’t an accessible option. Our goal is to have every app, and I mean every single
app, to be accessible.

Several years ago, I went to China for the first time. When I arrived in my hotel in Beijing I did what I always do when I go somewhere new. I explored. And while exploring the room, I discovered an unidentifiable object. It felt a little like a piece of fruit, but I’d never seen anything like it before. I was wondering: should I taste it?

[Laughter]

I was super curious to find out what it was, but not curious enough to taste an unknown object.

[Laughter]

So instead I got out my camera, on my iPhone, took a picture, and texted it to a friend,
asking: what on earth is this? Is it safe to eat?

I learned that it was dragon fruit. And I discovered I like dragon fruit. Now imagine a lot
of people thinking, why would a camera app need to be accessible? Why would blind people
ever take pictures? We take pictures for the same reasons sighted people take pictures. To capture moments, to share experiences with friends.

Our goal is to make sure all apps are accessible. Try not to make assumptions about what people with disabilities can and can’t do. Instead, strive for inclusion. And as you strive for
inclusion for your apps, here are a few things to keep in mind.

It helps to plan for accessibility from the start. It’s much easier, it saves you resources if you plan for accessibility, from the very start. I’ll give an example from the physical world. Imagine someone builds a skyscraper but realizes they forgot to put an elevator. Tears down part of the building, and then installs an elevator. That’s more time consuming and drains resources. It would be much
easier to just plan for an elevator from the start. Same principle applies in the digital world. You save yourself resources when you can have accessibility from the very start.

And there are engineers with disabilities, designers with disabilities, testers with disabilities, to help you with the process. There are all so many disability organizations in the U.S. and around the world, to help provide feedback. Engage with us, from initial design to app updates.

Apple also has a lot of resources to help you with this process. There are online tutorials, documentation, accessibility guidelines for iOS. Tomorrow evening here, at WWDC, we’re going to have an accessibility mixer. Come and join us. I’ll be there to answer questions, lots of accessibility
people will be there, including developers who’ve gone through this process of making sure their
apps are accessible. So these are resources that are available to you and will help you design apps that are accessible.

Accessibility benefits your consumers, but it also benefits you. Accessibility has many
benefits for you because one: people with disabilities are the largest minority group. About 1 in 5 Americans lives with a disability. So when you design with accessibility in mind, you get access to
more customers, more people can benefit from your services.

Another thing to keep in mind is accessibility increases access for everyone, including non-disabled users. For example, when you caption your videos, and you add alternative text to your images, more text is associated with your content. And because of that, it’s easier for people to find your content through powerful keyword searches. The videos from WWDC are captioned and those captions, produce a transcript and anyone can do a keyword search and find exactly where in the
video a topic was discussed. This is an example of how a feature that benefits the Deaf community, also benefits the greater community.

But the most important point is innovation. Disability drives innovation. When you think about new ways of accessing information, new ways for people to connect, and engage with each other, you’re going to find yourself designing the next best thing.

Throughout our history disability has sparked innovation, that benefits all of us today. Many of the products we use today can be traced back to disability.

In 1808, an Italian inventor named Turri built one of the first working typewriters. He wanted a solution for producing print that didn’t require vision. That someone can do by touch. Now Turri had a lover who was blind, and he wanted her to be able to write him love letters. So he designed the first, one of the first working typewriters as a possible solution. And now today, around the world, we have lots of touch typists, lots of people who use keyboards without using vision, both sighted typists and blind typists.

More recently, one of the fathers of the internet, Vinton Cerf, is hard of hearing, and his wife is also hearing impaired, and they were looking for a solution that would allow them to communicate without using hearing. And to communicate from afar. Disability drives innovation, not just by non-disabled
inventors but by people with disabilities as well. Vinton ended up developing one of the earliest email protocols, and electronic mail was one way for them to communicate from afar. And now, just about
everybody uses email, and sends text messages. Solutions designed with disability in mind end up benefiting the entire community.

Central to innovation is exploration. I’m going to share a photo of a jungle gym. A jungle gym
highlights exploration. There are multiple ways to get to the top, there isn’t a right or wrong way to climb, there isn’t a right or wrong path to take. When I’m climbing I can’t see the ropes. This is about, 20 feet tall. It’s a pyramid shaped, rope-based jungle gym. When I climb, I reach out, explore, until I find the ropes, until I find the solutions.

There are many, many, many different ways to climb: by touch, by sight, by sound. You could have someone down on the ground offering voice guidance. If you have a mobility disability, you can design an assistive climbing device. Exploration values alternative techniques and the more open you are to seeing the world in multiple perspectives, the more likely you are going to design, develop
the next big thing.

One area where we rarely seek innovation is haptics. Haptics is the concept of communicating
information through touch. I have an Apple Watch, and it taps my wrist twice when I get a message. That’s a form of communication based on haptics, touch.

I recently went surfing, and that whole experience was about haptics. Here’s a photo of me on a tandem board. A tandem board is a large board. I’m standing near the front and in the back is
the surf instructor, Matt Allen from Maui Surf Academy. He was using tactile signals. I could also feel the power of the waves vibrating through the surf board, the wind, the sun, the cold water. Skin is our largest organ, yet we’ve barely explored the potential of haptics. There’s a lot of potential
at this intersection of haptics and technology.

Keep exploring, keep innovating, keep designing apps that are going to increase access for everyone. As you go through this process, engage with the disability community, plan for accessibility from the start and design knowing that it’s going to benefit you.

Thanks for listening everyone.

[ Applause ]

Haben Awarded the Alexandrine Medal and Delivers Commencement Address at St. Catherine University

Haben is standing at the St. Catherine University podium wearing academic regalia, and behind her is a US flag.

St. Catherine University honored Haben Girma with the Alexandrine Medal on May 22, 2016. Named after the Egyptian scholar Catherine of Alexandria, St. Catherine University awards the Alexandrine Medal to women who demonstrate an outstanding commitment to public service. Past recipients include Dorothy Day, Ann Bancroft, and Maya Angelou. Haben is the youngest person to … Read more

President Obama, Haben Girma, and Alice Wong highlight how technology empowers people with disabilities

President Obama Celebrates the 25th Anniversary of the ADA

Transcript

HABEN GIRMA: I hope to use the technology to help teach others that technology can bridge the gap for people with disabilities, and as internet services open more opportunities for people, we’re going to see more people with disabilities employed and succeeding.

(The President hugs Haben)

HABEN: Thanks for supporting us.

THE PRESIDENT (typing): I couldn’t type a hug.

HABEN: I prefer real hugs to typed hugs.

(Laughter)

(Scene changes to The President speaking at a podium)

THE PRESIDENT: Thanks to the ADA, the places that comprise our shared American life – schools, workplaces, movie theaters, courthouses, buses, baseball stadiums, national parks – they truly belong to everyone.

THE PRESIDENT: Millions of Americans with disabilities had the chance to develop their talents and make their unique contributions to the world, and thanks to them, America is stronger and more vibrant – it is a better country because the ADA – that’s what this law has achieved.

(Scene changes to The President talking to Alice Wong via videoconference robot)

Unidentified: This is Alice Wong.

THE PRESIDENT: Hi Alice. We’re having a great celebration. I want to thank you for your leadership.

ALICE: I’m honored to be here, and I’m honored to be part of this.

THE PRESIDENT: I hope that you know that you’ve got a friend in the White House that’s gonna be fighting every day to continue to make the advancements that we’re talking about.

ALICE: Thank you so much for everything you’ve done for Americans with disabilities.

(Scene changes to The President typing to Haben)

THE PRESIDENT (typing): Hi Haben.

HABEN: Hello, it’s good to meet you. I was chatting with Valerie Jarrott earlier, and we were wondering if you could type as fast as she can.

(Laughter)

THE PRESIDENT (typing): She is much faster.

HABEN: Your typing is pretty good; my dad types with two fingers.

(Laughter)

THE PRESIDENT (typing): I am too.

HABEN: You’re typing with two fingers?

(Laughter)

THE PRESIDENT: I’m gonna type a little faster now – I’m Embarrassed.

(Scene changes to The President talking to Alice)

Unidentified: Alice – show The President what you can do with the machine.

THE PRESIDENT: Alison, you’re gonna move up a little bit here?

ALICE: (inaudible)

THE PRESIDENT: There you go.

THE PRESIDENT (dancing): To the left, to the right.

(Laughter)

THE PRESIDENT: We can do a little dance.

ALICE: Absolutely.

Unidentified: To your left, Alice. There we go.

THE PRESIDENT: How cool was that?

Unidentified: And then right this way.

(Scene changes to The President typing to Haben)

THE PRESIDENT (typing): We are so proud of the leadership you have shown. Your dad must be proud, too. That time I typed with more than two fingers.

(Scene changes to The President speaking at a podium)

THE PRESIDENT: Millions of Americans with disabilities have had the chance to develop their talents and make their unique contributions to the world, and thanks to them, America is stronger and more vibrant – it is a better country because the ADA. That’s what this law has achieved.

Haben’s White House Remarks

Presidential Remarks on the 25th Anniversary of the Americans with Disabilities Act (C-SPAN)

Haben had the honor of introducing President Barack Obama and Vice President Joe Biden at the White House 25th Anniversary Celebration of the Americans with Disabilities Act.

Transcript

HABEN: Good afternoon! (Good afternoon!) My name is Haben Girma. Allow me to share a story.

When my grandmother took my older brother to school in East Africa, they told her that deafblind children can’t go to school. There was simply no chance. When my family moved to the U.S., and I was born also deafblind, we were amazed by the opportunities afforded by the ADA—opportunities won by advocates like all of you.

In 2010, I entered Harvard Law School as its first deafblind student. Harvard didn’t know exactly how a deafblind student would succeed, (Laughter) and honestly…I didn’t know how I would survive Harvard. (Laughter) Without having all the answers, we pioneered our way using assistive technology and high expectations.

For my grandmother back in Africa, my success at Harvard seemed like magic. To all of us here, we know that people with disabilities succeed not by magic, but from the opportunities afforded by America and the hard-won power of the ADA.

Through my work at Disability Rights Advocates, I strive to ensure that people with disabilities have full access to the digital world—internet services, online businesses, websites, and apps. Every day I’m reminded that as far as we’ve come, the drive for equality is not over.

And now, it’s my honor to introduce two leaders who work to ensure that all Americans have the opportunity they seek: please welcome Vice President Joe Biden and President Barack Obama!

(Applause.)

THE PRESIDENT:  Hello, everybody!  (Applause.)  Well, welcome to the White House.  And thank you so much, Haben, for that amazing introduction, and for working to make sure that students with disabilities get a world-class education, just like you have.  So please give Haben a big round of applause.  (Applause.)

So on a sunny day 25 years ago — I don’t know if it was as hot as it is today — (laughter) — President George H.W. Bush stood on the South Lawn and declared a new American Independence Day.  “With today’s signing of the landmark Americans [with] Disabilities Act,” he said, “every man, woman and child with a disability can now pass through once-closed doors into a bright new era of equality, freedom and independence.”

Twenty-five years later, we come together to celebrate that groundbreaking law — (applause) — and all that the law has made possible.  Thanks to the ADA, the places that comprise our shared American life — schools, workplaces, movie theaters, courthouses, buses, baseball stadiums, national parks — they truly belong to everyone.  Millions of Americans with disabilities have had the chance to develop their talents and make their unique contributions to the world.  And thanks to them, America is stronger and more vibrant; it is a better country because of the ADA.  (Applause.)  That’s what this law has achieved.

So today, we honor those who made the ADA the law of the land -– many of whom are here today.  Tom Harkin — (applause) — Tom Harkin is in the back there, and Tom delivered speeches in sign language on the Senate floor in favor of this law, in part inspired by his brother, Frank.

Bob Dole is here.  (Applause.)  A war hero whose combat-related disability informed the way he advocated for all Americans with disabilities.

Tony Coelho — (applause) — told he couldn’t become a priest because of his epilepsy, so he became a congressman instead — (laughter) — and helped to pass the ADA, so fewer Americans would find the word “no” being an obstacle to their dreams.

In the 1970s, Judy Heumann helped lead the longest sit-in at a federal building in U.S. history, in support of disability rights.  (Applause.)  Today, she’s at the State Department, advocating for people with disabilities worldwide.  She and all the others I mentioned deserve America’s thanks for their tireless efforts.  (Applause.)

I want to thank some of the activists who are here — folks like Ricardo Thornton and Tia Nelis.  (Applause.)  In 1999, the Supreme Court ruled that institutionalizing people with disabilities — isolating them, keeping them apart from the rest of the community — is not just wrong, it is illegal.  Ricardo and Tia have pushed to make sure that ruling is enforced.  And I am proud of what my administration has done to ensure that people with disabilities are treated like the valuable members of the communities that they are.  (Applause.)

And I want to thank all the members of Congress and members of my administration who are here today — including our outstanding Secretary of Labor, Tom Perez — (applause) — and the White House’s fantastic new Disability Community Liaison, Maria Town.  (Applause.)  Yay, Maria!

Now, days like today are a celebration of our history.  But they’re also a chance to rededicate ourselves to the future — to address the injustices that still linger, to remove the barriers that remain.

The ADA offered millions of people the opportunity to earn a living and help support their families.  But we all know too many people with disabilities are still unemployed — even though they can work, even though they want to work, even though they have so much to contribute.  In some cases, it’s a lack of access to skills training.  In some cases, it’s an employer that can’t see all that these candidates for a job have to offer.  Maybe sometimes people doubt their own self-worth after experiencing a lifetime of discouragement and expectations that were too low.  Whatever the reason, we’ve got to do better — our country cannot let all that incredible talent go to waste.

A few years ago, I issued an executive order requiring the federal government to hire more Americans with disabilities.  (Applause.)  And in part because of that executive order, today more people with disabilities are working with us than at any point in the last 30 years.  (Applause.)  Some of these folks are some of my closest colleagues and have been incredible leaders on behalf of the administration on a whole host of issues, and I’m grateful for their contributions every single day.

And we’ve strengthened the rules for federal contractors to make sure they have plans in place for hiring people with disabilities.  (Applause.)  I’m hoping more employers follow suit, because Americans with disabilities can do the job, and they’re hungry for the chance and they will make you proud if you give them the chance.  (Applause.)

The ADA also made our government more responsive to Americans with disabilities.  But we’ve still got more to do to live up to our responsibilities.  My administration created the first office within FEMA dedicated to disability, so that when disaster strikes, we’re prepared to help everybody, including those with physical or mental conditions requiring extra help.  And we created the first special advisor for international disability rights at the State Department — because this is not just about American rights; it’s about human rights, and that’s something our nation has to stand for.  (Applause.)

So we’ve still got to do more to make sure that people with disabilities are paid fairly for their labor; to make sure they are safe in their homes and their communities; to make sure they have access to technology, including high-speed Internet, that allows for their full participation in this 21st-century economy. We’ve still got to do more to make sure that children with disabilities get every opportunity to learn and acquire the skills and the sense of self-worth that will last a lifetime.  That is our most sacred charge.  (Applause.)  And we need Republicans and Democrats in Congress to make sure we have a budget that lets us keep that promise and keep that commitment.  (Applause.)
So I don’t have to tell you this fight is not over.

AUDIENCE MEMBER:  Oh, no.

THE PRESIDENT:  Oh, no.  (Laughter.)  But we’re building a stronger foundation.  And thanks to generations of Americans who fought for better laws, who demanded better treatment, who by just being good and decent people and effective workers, and working hard every day, and treating others with respect, and asking the same in return — folks have overcome ignorance and indifference, and made our country better.

I’m thinking of folks like Hamza Jaka, who’s here from Wisconsin with his mom.  He gloated that he’s a Packers fan — (laughter) — and they’ve been beating the Bears a lot lately.  But Hamza has cerebral palsy.  As he puts it, people always assume his condition must limit him.  But the opposite is true.  His disability has given him unique experiences, and a sense of purpose that he cherishes.  He traveled to Syria to meet other young people with disabilities, and together they created a comic book featuring a Muslim superhero who uses a wheelchair called the “Silver Scorpion.”  (Applause.)  This fall, he’s starting law school, where he’s going to learn how to be an even more effective advocate.

And then you’ve got somebody like Leah Katz-Hernandez.  (Applause.)  Leah is one of my favorites.  (Laughter.)  Her smiling face is one of the first things that people see when they come into the White House.  She is the West Wing receptionist.  We call her ROTUS –- (laughter) — I’m POTUS, this is VPOTUS, and that’s ROTUS.  (Laughter and applause.)

And ROTUS is the first deaf American to hold that job.  She is poised, she is talented — and as she puts it, a lot of her accomplishments may not have been possible without the ADA.  (Applause.)

And just on a very practical level, this law meant she could ask for sign language interpretation on job interviews — very straight forward.  But without this law and without enforcement of the law, those things don’t happen.  On a deeper level, the fact that the ADA was passed a few years after Leah was born opened possibilities to her that previous generations didn’t always have.  She says that, thanks to this law, “I grew up knowing I was equal, not subhuman.”  (Applause.)

And I’ve told this story before, but whenever I think about the ADA, I think about my father-in-law, Fraser Robinson, who was diagnosed with multiple sclerosis in his early 30s.  By the time I knew him, he needed crutches to get around.  He was holding down a job and raising a family at a time where the ADA had not yet been passed.  He never missed a day of work.  He had to wake up an hour earlier than everybody else just to put on his shirt, just to get dressed, just to get down to the job, but he was never going to be late.

If he went to his son’s basketball games, he and the family would have to get there 45 minutes early because he didn’t want to interrupt people as he climbed one stair at a time on crutches so that he could cheer on his son.  Same thing if he went to Michelle’s dance receptions.  And just through the power of his example, he opened a lot of people’s eyes, including mine, to some of the obstacles that folks with disabilities faced and how important it is that the rest of us do our part to remove those obstacles.

And just an aside on this, for a long time, he would not get a motorized wheelchair because he had gotten this disability at a time when they weren’t available and it was expensive, and they weren’t wealthy, and insurance didn’t always cover it.  And it just gave you a sense of — Michelle and I would talk sometimes about how much more he could have done, how much more he could have seen — as wonderful as a dad as he was, and as wonderful as a coworker as he was, he was very cautious about what he could and couldn’t do — not because he couldn’t do it, but because he didn’t want to inconvenience his family and he didn’t want to be seen as somehow holding things up.

And that’s what, even for folks who had amazing will, was the nature of having a disability before this law was passed.  It wasn’t just physical obstacles.  It was also constraining how people thought about what they should or should not do.  And that’s why this is personal.  That’s why it’s so important for us to remember what this law means.  That’s what today is all about. We’ve got to tear down barriers externally, but we also have to tear down barriers internally.  That’s our responsibility as Americans and it’s our responsibility as fellow human beings.

As long as I’ve got the privilege of serving as your President, I’m going to make sure every single day that I’m working alongside you to tear down those barriers.  I know Joe Biden is going to be doing the same.  And I am going to make sure that when we look back 18 months from now, we’re going to say we have made some significant advances.  And once I’m no longer President, I’m going to keep on pushing as well.

Thank you, everybody.  God bless you.  (Applause.)

TEDx Talk: Why I work to remove access barriers for students with disabilities

Why I work to remove access barriers for students with disabilities | Haben Girma | TEDxBaltimore

Haben speaks at TEDx Baltimore 2014 on her education and experiences with a nonprofit where she used to work.

Transcript

My name is Haben Girma. I work as a Skadden Fellow at Disability Rights Advocates. In other words, I’m a lawyer. What’s a lawyer? Well, there are many stereotypes, negative stereotypes of lawyers: People who never give you a straight answer; people who just want your money; people who aren’t even people, they’re sharks. These images are so strongly imbedded in our culture that people tell me, half-joking, “I don’t like lawyers.” When people think of lawyers, they really think of just one type of lawyer. Think about it, imagine, when you envision a lawyer, what do you see? Do you see a woman? Is that the first thing that comes to mind? How about someone using a wheelchair? Do you see someone who is deaf and signing? Or even, do you see someone who’s nice? There are many types of lawyers, and public service lawyers are changing what it means to be a lawyer. These are people who work and advocate for communities they love. For some of these lawyers, personal experiences fuel the desire to put an end to widespread injustice. People who experience challenges sometimes develop strengths that make them great advocates. Lawyers take experiences of poverty, race, gender, disability, or other forms of discrimination, and use that knowledge as a ladder for legal advocacy. For me, a lifetime of needing to advocate for myself – prepared me for the field of law. My disability is deafblindness. Helen Keller paved a path of possibilities for deaf-blind children and adults who came after her. These individuals need to move forward as pioneers, in a world designed for people who can see and hear. Many members of minority groups move forward as pioneers.

The process of pioneering one’s way through obstacles builds strong self-advocacy skills that can be used in the field of law or other forms of advocacy. As a pioneer, I went to the perfect college: Lewis & Clark. They call their football team the Pioneers. Their favorite place to hang out in downtown Portland? Pioneer Square. What else? Oh, and they call their school bus the Pioneer Express. As a pioneer, I lived for two years in the dorms at Lewis & Clark, and I ate at the cafeteria. The cafeteria had about 5 different food stations, and there was a menu at the door, and people would read the menu and choose what they wanted to eat. Blind students like myself couldn’t read the menu. The staff at the cafeteria offered to read me the menu, but I couldn’t hear it. As a blind student, my first choice would be to read the menu in braille. Braille takes time to produce, so we compromised. The staff agreed to email me the menu at the start of each meal, and I would be able to read it on my computer using a screenreader. It was a great idea, but the cafeteria constantly forgot to email the menus. Since I couldn’t read the menu, and I couldn’t hear the staff in the cafeteria, I couldn’t choose what I was going to eat. So after classes, I would pick a station at random, I would go up and take whatever was served by the staff behind the counter, I would take it to the table, and only then would I realize what I was going to eat. There were some unhappy surprises.

(Laughter) As a busy student with classes and preparing for exams and writing papers, the last thing I needed was this added frustration. But sometimes they did remember to send the menus, and when they did, I was thrilled to have choices. For example, if the menu said, “Station 3, tortellini with smoked gouda cheese,” I would know to skip stations 1 and 2 and go straight to station 3. When they remembered to send the menus, life was delicious. But they regularly forgot to send the menus. For the first few months, I didn’t do anything about it. I live and operate in a world that’s designed for people who can see and hear, and I figured this would just be another thing I would have to deal with, like not being able to drive, or not being able to watch the latest Grammies, or people not knowing how to communicate with someone who is deaf-blind. One of my best friends, when she first met me, didn’t know how to talk to someone who’s deaf-blind. In our international law class at Harvard, she was assigned to sit next to me, and we all had assigned seating. And, she thought she could wave, but what if I didn’t see it, and if she speaks, would I be able to hear it? So, she did the most logical thing for a student to do, she went onto Facebook, and sent me a message saying, “Hi, Haben, I’m sitting right next to you!” (Laughter) I’m happy to teach people how to communicate. I love those who embrace diversity. There’s all kinds of diversity.

Occasionally, there are individuals or organizations who are not willing to make accommodations for people with disabilities. And there’s that decision, do you just deal and let it go, or do you do something about it? And those menus, at that cafeteria, was a pivotal moment for me when I decided I should do something, for myself, and for future blind students who came to that college, Or anyone else who needed menus in alternative formats. So I explained to the manager at the cafeteria that I paid to eat at the cafeteria and like all the other students, I deserved access to the menus so I could take advantage of these services. The manager told me, they’re very busy, he’s doing me a big favor, and I needed to stop complaining and be more appreciative. I don’t know about you, but if there’s chocolate cake at station 4 and no one tells me, I’m not feeling appreciative. (Laughter) So, after several incidences of missed chocolate cake, I had enough, I tried something new. The Americans with Disabilities Act, ADA, was passed in 1990. Congress passed this law to protect the rights of people with disabilities. The law symbolizes a change from treating people as second class citizens. The ADA states that businesses like the cafeteria are required to make reasonable accommodations for individuals with disabilities. Emailing a menu is a reasonable accommodation.

I told the manager that if he would not send emails consistently, I would sue. To tell you the truth, I had no idea how I would do that. (Laughter) I was 19, how would I afford a lawyer? I was nervous that lawyers and judges wouldn’t understand. Besides, it’s just a menu, right? Lewis & Clark did an excellent job of giving me my course materials, my textbooks, my exams in braille. Students all across the country – blind students in other colleges, struggle to get basic access to books, even today. So who was I to complain? My mother grew up in Eritrea, amidst a 30-year war with Ethiopia. When she was 18, she trekked for two weeks from Eritrea to Sudan, then from Sudan, through a refugee organization, made it to America for a better life. So who was I to complain? I was worried that someone would think that access to a menu was too trivial, that it was a privilege, and not a right. But at the same time, I was also excited about the possibility of making the college a better place, even if it was just one other blind student that came after me. I had a vision, of helping other people, I had a vision, of joining the civil rights movement, maybe even becoming a lawyer. I had a vision, of eating that chocolate cake. (Laughter)

After teaching the cafeteria staff about the ADA, everything changed. They agreed to provide menus consistently, and they did. Learning about the ADA changed their attitude. They originally thought that providing access for students with disabilities was a favor, something they could do in their free time, when they were in the right mood. Learning about the ADA changed the culture in the cafeteria. The ADA creates legal obligations to treat people as equals. Schools nowadays admit students with disabilities, and that’s great. Access goes beyond the schoolhouse gate. We need access to online learning tools, to math and science courses, to study-abroad programs, and yes, even dessert menus. My experiences as a pioneer inspired me to become a lawyer. I now work in Berkeley, at Disability Rights Advocates, a national nonprofit organization. One stereotype of lawyer is that they’re just after your money. DRA does not charge clients. Civil rights need to be accessible. One tool used by lawyers, including at DRA, is the class action litigation. Class actions are when a group of people come together to sue someone who’s doing something wrong. It’s a way to help improve access to important things like education, or employment, and healthcare, at a national level.

A few years ago, several students at UC Berkeley came to DRA with concerns. Students with print reading disabilities need access to course materials in alternative formats. Like braille, large print, audio, digital. The university was taking so long to provide these materials, that students were at risk of failing their courses. Through the help of lawyers at DRA, students were able to reach an agreement with the university. The university now has new policies that are turning Berkeley into a model for other schools. Lawyers first and foremost educate their communities. I know that if people learn how to help, they will. So if you’re a programmer, a web engineer, learn about the web accessibility guidelines. If you’re an architect, learn about the ADA guidelines for new constructions. We can choose to make our communities accessible. It’s in our power to provide access for everyone. Those individuals who’ve had to move forward as pioneers are particularly well-positioned to help their communities, whether as lawyers, or as other advocates. My name is Haben Girma, and I hope I’ve given you a new vision of lawyers. Thank you. (Applause)